As of right now I am a 35 year old mother battling systemic lupus, and Bell’s Palsy.
I’ve dealt with lupus a very long time whether diagnosed or not. What I mean is that I’ve shown symptoms all the way back to when I was a toddler. The symptoms became worse when I was about 17 although we didn’t know what it was back then. I wasn’t diagnosed for several more years but was misdiagnosed with other things. The Bell’s Palsy I have dealt with since last February 1.
Yes, I know the exact date. You would, too, if you woke up with your face swollen up like a watermelon about to burst apart and you were left paralyzed on the left side of your face, and your left eye scratched from the pressure from being swollen almost entirely shut.
A person tends to remember that sort of thing.
Anyway..my battles continue tonight with all my screwed up crap my body is throwing at me.
My best friend Andy sent me a link to another of his friend’s pages on here..and well I thought why not?
I’ve heard about this person for over a decade and a half. Let’s see who this guy is.
Turns out, Andy was trying to comfort me, I think. The entry, he said, was something he thought I may relate to. And he was right.
So, I started this so i could more easily follow said person’s blog.
And maybe writing about my own battles would help me some, too..even if just to vent.
Sometimes, like tonight, there is an extreme amount of pain.
And in the morning when I wake up I will go into the doctor’s office even though it’s Saturday. And I’ll go in there not knowing what’s going to happen, or whether or not she will even be able to help me. I just know we’ve got to try something because it’s getting hard to push through the pain and function.
I have a 5 year old son. I have no choice but to be able to function.
Didn’t mean to go into it all but I’m finding..once I “opened my mouth” (or in this case given my fingers permission to be free with my words) the words are just spilling out.